Fatigue is a Friend
Day three of the five day chemotherapy course.
Chester has been very tired but is otherwise doing well. He has been sleeping long and hard at night, and taking naps all afternoon. Sleep is a strong Ally right now, and we allow as many naps and rests as he needs to get through these days. We are glad that his schedule has been quite open this week, and have not scheduled any additional social visits or appointments, to allow for ample rest.
Today we ran errands together; got an extra car key made at the dealership, picked up his favorite goat cheeses at Trader Joe's, got another pair of elastic shoelaces. We also had a very productive meeting with Gale, our very kind social worker at the Alta Bates Comprehensive Cancer Center. She is helping us apply to get the chemotherapy drug paid for (it runs $2500 a month- or $166.66 a pill!) We will also be applying for Medical, which will be a better health insurance than Chester has in place and will be free. Hopefully these two programs will be approved and go into effect in the next month or two. We are navigating the system the best we can and staying afloat.
Tomorrow a friend is coming as a day companion for Chester so I can go back to work (my first full day of paid work in five months!), and will be cooking another gourmet dinner as Chester rests in the afternoon. I look forward to coming home to Chester, a hot meal, and good friends to share it with.
Not yet 8 pm and Chester is fast asleep. He'll be up before sunrise, trying to be quiet as a mouse so as not to wake me. He'll take an anti-naseua pill and then wait a half hour. Then he'll take the fourth dose of chemotherapy, again unleashing the chemical predators, sending them to hunt in his brain and devour any tumor cells they come across. We'll wake again together, have goat cheese omelettes and warmed bread, again finding ourselves alive and breathing.
Sometimes I am swept away in wonder. . .This Simple Time. This is the time we've been gifted.
Chester has been very tired but is otherwise doing well. He has been sleeping long and hard at night, and taking naps all afternoon. Sleep is a strong Ally right now, and we allow as many naps and rests as he needs to get through these days. We are glad that his schedule has been quite open this week, and have not scheduled any additional social visits or appointments, to allow for ample rest.
Today we ran errands together; got an extra car key made at the dealership, picked up his favorite goat cheeses at Trader Joe's, got another pair of elastic shoelaces. We also had a very productive meeting with Gale, our very kind social worker at the Alta Bates Comprehensive Cancer Center. She is helping us apply to get the chemotherapy drug paid for (it runs $2500 a month- or $166.66 a pill!) We will also be applying for Medical, which will be a better health insurance than Chester has in place and will be free. Hopefully these two programs will be approved and go into effect in the next month or two. We are navigating the system the best we can and staying afloat.
Tomorrow a friend is coming as a day companion for Chester so I can go back to work (my first full day of paid work in five months!), and will be cooking another gourmet dinner as Chester rests in the afternoon. I look forward to coming home to Chester, a hot meal, and good friends to share it with.
Not yet 8 pm and Chester is fast asleep. He'll be up before sunrise, trying to be quiet as a mouse so as not to wake me. He'll take an anti-naseua pill and then wait a half hour. Then he'll take the fourth dose of chemotherapy, again unleashing the chemical predators, sending them to hunt in his brain and devour any tumor cells they come across. We'll wake again together, have goat cheese omelettes and warmed bread, again finding ourselves alive and breathing.
Sometimes I am swept away in wonder. . .This Simple Time. This is the time we've been gifted.
posted by Chrys Curtis-Fawley at 7:41 PM
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