So Far, So Good
It is a chilly but clear Tuesday morning here in Oakland. We just came in from a long walk outside and our ears are still cold. Chester completed his "circuit" (the length of the building, up the back stairs, across the mezzanine and back down the front stairs) in record time, about 20 minutes. There is no sense of it being a race, rather we are looking for a nice, even gait with consistent pace. His physical therapist then assisted him in practicing walking with a shopping cart- strapping his hand onto a board across the top so that he can steer the cart and use it as support to walk with. This is towards the goal of being more mobile within public spaces, and also has the challenge of using a wheeled support in front of him to walk with, rather than a stable cane at his side. Now we are back inside and Chester is doing some weight-bearing exercises on his right arm.
Today is Chester's second day of chemotherapy. He began his five day cycle yesterday morning. The dose is strong- 300 mg of Temodar taken first thing in the morning. So far, he has continued to tolerate the chemotherapy astonishingly well. Yesterday he was a bit tired after a long day of shopping excursions with Jaime, and took a 2 hour nap before dinner. We joked that given the choice between fatigue and naseua, fatigue is the better choice! So we are continuing on with the treatment, and are feeling good about it so far.
We are enjoying the break from the daily hospital visits, and have been savoring this stretch of time without a lot of doctors and treatments. Even with the chemotherapy course, our days are still feeling less medicalized and regimented than in previous months. We are enjoying more time just relaxing, listening to music, playing card games, and having easy conversation.
Several folks have been in touch about stepping up to offer time as Chester's primary companion or offering other kinds of assistance. Many thanks! There is still room for more help, so let us know if you are considering it. Also let us know if you want to come visit and just say hello, and we can make that happen. Our days are spacious and relaxed right now, and Chester is in good spirits. A good time to come and sit with him for a spell.
Be In Touch!
Today is Chester's second day of chemotherapy. He began his five day cycle yesterday morning. The dose is strong- 300 mg of Temodar taken first thing in the morning. So far, he has continued to tolerate the chemotherapy astonishingly well. Yesterday he was a bit tired after a long day of shopping excursions with Jaime, and took a 2 hour nap before dinner. We joked that given the choice between fatigue and naseua, fatigue is the better choice! So we are continuing on with the treatment, and are feeling good about it so far.
We are enjoying the break from the daily hospital visits, and have been savoring this stretch of time without a lot of doctors and treatments. Even with the chemotherapy course, our days are still feeling less medicalized and regimented than in previous months. We are enjoying more time just relaxing, listening to music, playing card games, and having easy conversation.
Several folks have been in touch about stepping up to offer time as Chester's primary companion or offering other kinds of assistance. Many thanks! There is still room for more help, so let us know if you are considering it. Also let us know if you want to come visit and just say hello, and we can make that happen. Our days are spacious and relaxed right now, and Chester is in good spirits. A good time to come and sit with him for a spell.
Be In Touch!
posted by Chrys Curtis-Fawley at 10:19 AM
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