Tuesday, March 06, 2007

Okra, dolmas and blueberry pancakes!


Although his appetite waxes and wanes, Chester's unbridled enthusiasm for flavor holds true. He has been delighting in the good food that his brother has been cooking for him. He was having a rough, sleepy morning until he heard that his step mom was going to make him blueberry pancakes. The promise of blueberry pancakes woke him right up. Well OK maybe my icy cold hands helping him use the urinal might have had something to do with his instant awakening, but it was the blueberry pancakes that put a smile on his face.

Several of you have called and asked me about sending some type of food to Chester. He can no longer eat sushi. When I asked him what he might like, he immediately piped up okra. He has a large jar of pickled okra that he likes to snack on and he made it clear that a little more of that would be a good thing. He also misses some of the foods that are harder to acquire out here.He was practically orgasmic over some dolmas that I brought with me from Seattle. He also has adored some treats that I brought from Trader Joes.


The house has been busy with family, friends and hospice. Yesterday a highschool, friend fixed him lunch and he was able to visit with her inbetween hospice assessments. The hospice nurse visited this morning and she and I did his physical assesssment together so I could help translate for her and Chester could hear from the both of us about trying to stay on top of pain instead of chasing it. He is having some pain on his paralyzed right side that increases when he moves around. He wants to get up in his wheelchair to join visitors at the dining room table, so we are working out a balance for his comfort and social needs. Right now, his dad and step mother is helping him with a leopard puzzle. It only has 100 pieces and the large size of the puzzle pieces are easier for him to grasp. With his vision changes, he needs considerable assistance but he is doing something with people that he loves and feels a deep satisfaction when he can fit a piece in.

Chester and his dadPhysically, things are slowing way down but good food, lots of love and simple joys help keep his spirits up.

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